“There is a teenage girl named Samantha who suffers from an Eosinophilic Gastrointestinal Disease (Eosinophilic Esophagitis). She is allergic to food. Samantha is fed formula through a tube in her stomach, her only safe food is white potatoes. Although Samantha can’t eat, her dream is to become a chef. She loves cooking for others, it helps her feel connected to meals which are such a central part of our lives. Think of how much of our lives revolve around food – imagine if you or your child was permanently isolated? Samantha had wanted one of the cooking shows like an “Iron Chef” or “Top Chef” to challenge their chefs to prepare food eliminating the Top 8 Allergens. I think it would be amazing for Samantha to get to see her dream become reality while spreading awareness for EGIDs. As an orphan illness we receive $0 in government funding unlike other gastrointestinal disorders. Many children have few if any safe foods and live on formula; no cake at birthdays, no eating in the lunchroom or family meals, repeated doctor visits, tests and hospital stays… it is truly heartbreaking… Samantha wants a cure so she can taste the food she cooks. I would love to at least see part of her dream come true by one of the cooking shows doing the Top 8 Elimination challenge, but how much greater if she could actually BE there and meet the chefs?! She is a brave girl who has done numerous YouTube videos to spread awareness, I would love to see her given an opportunity to spread awareness even further.”
WOW!!!! How could I not try to help this courageous and inspirational young lady?
There are a few ways I may be able to help and I will try every one of them.
- I have contacted Samantha’s family to let them know her efforts have not gone unnoticed and that people like Stacey and I are working alongside her. (I encourage you to do the same via her Facebook page.)
- I will try to promote Samantha’s cause via this blog and all the social media tools I have at my disposal.
- I am forwarding her request on to every contact I have in television, particularly those at Bravo, which airs Top Chef.
- Posting links to her cause wherever I think it may gain traction.
I have no idea if my efforts will make her dream a reality, but nothing would make me happier than seeing Samantha on TV.
Please add your name to Samantha’s Change.org petition. It only takes a second.
Make a tribute donation via CaringBridge.
Make a donation to CURED. Get this, 100% of your donation goes into researching a cure. 100%!!!
Visit her Facebook Page.
Watch her videos on YouTube